June 23: G20 and White cells

Hello,

The 48 hours hospital stay has turned into a 6 day stay so far.  But all is good, Mayas mucositis was not as bad as we initially thought.  The pain was well controlled and by sunday morning she was eating.  The team here has been weaning Maya off the morphine, and yesterday they completely stopped it.

The day we were admitted  Maya spiked a fever, but since then she has been afebrile.  The team is giving her 4-5 hour breaks with no IV lines (Since Sunday).  So Maya can run around the hospital  with no IV pole by her side :-).    BUT WHAT IS KEEPING US HERE ?  The answer is mainly her white cell counts and the G20 summit!!!.

maya june 21, 2010

(Maya going for a hospital walk with tia Jen)

Maya is still neutropenic, her white cell counts have been below 0.1 since last week.  This morning’s  blood work showed that the counts have increased slightly to 0.1 hurray!!!.  Still neutropenic but there is a sign of white cell recovery.   As of yesterday , the message was that  with no signs of Maya’s  counts recovering if she spiked  a fever again she may not be able to come back because of the G20 summit so they want to keep us here.   oh boy, the hospital has extra staff lined up for these days, and there is more security in the hospital.  You can see swat teams all around this area.

ahhhhh, we are scheduled to start round 5 of chemo on Monday, we have to get out of here for at least a couple of days.  In the past Maya has been neutropenic while at home, which means long day visits to the outpatient clinic, but we have a good night sleep and we are in the comfort of our home.  So tomorrow morning, if the white counts have increased by .1 again and Maya continues to be good I will make my case (beg,  cry, beg, beg, etc) to go home.

I have to say that this time around we have been lucky to have one of  our favourite nurses Holly.  She took care of Maya during the hemorragic cystatis and in the last round of chemo, so she knows Maya very well by now. By being at the hospital for so long you start to get to know all the staff.  I have to say that from the cleaners to the nurses and doctors they are very kind.  The cleaning lady in 7E is our favourite, her compassion and her kidness amaze me every day.   I cannot say enough about SK, all the volunteers, clowns, the kids programs, etc,  they are first class.  Yesterday the ROM brought the bat exhibit to the bear theather here, Maya attended it and had a blast.

Thanks to all of you who share our journey with us.  Thanks for checking on us, bringing food, writing letters for Maya,  the phone calls, the emails, etc   We are grateful. God bless you all

Indira

 

Some photos from our hospital stay:

Maya, Checking her nurse Emily?s vitals

Maya june 20, 2010

 

Maya, playing a video game- fathers day celebration at SKH

Maya , June 20, 2010

 

Goofing around with Daddy?s bike gear

maya june 22, 2010

June 19: Back at Sick Kids

Hello,

Maya has been admitted to Sick Kids

1) Maya spiked a fever of 38.1C on Thursday morning.

2) On wednesday night Maya started to complain of pain on her tummy and mouth, yes these are the hated mouth sores.  We have been lucky though as this is the first time Maya got them.

Maya is neutropenic (white cell counts less than 0, Maya has no immune system now) Fever and neutropenia combined is the winner ticket  for a hospital stay in a private room for at least 48 hours, including antibiotics.   On Thursday, Maya got both a platelet and blood transfusion as they were very low.   The fever has not come back since Thursday morning, however Maya also has developed sores (mucositis), she has them in her mouth, and in her throat, and most likely in her tummy ( all throughout her digestive track) as when she drinks or eats she complains of pain on these 3 areas.

So here we are back at Sick Kids since Thursday morning, with doctors, nurses, cleaners wearing yellow gowns and masks when they come in, and of course Maya cannot leave the room.  Most likely this will be lifted today, but we are staying for a few more days due to the mucositis.   To control the pain, Maya is getting morphine through her IV line.

Maya is hungry but it is painful for her to eat. She has been having  jello, bear paws, clear chicken broth, lots of ice chips, ice cream and slushies.  She has had a few meltdowns and has had a couple of  nasty moody episodes, but I just breath, breath, breath and give her a hug.

This morning for the 4am vital signs check up, she started to cry when her temperature was being taken orally,  blood was coming out of her mouth, she has mouth sores under her tongue, and the thermometer touched one them.  From now on they will take her temperature under her arm.

Yesterday, Maya went for a very long, long ultrasound, almost an hour long.  I remembered when Maya was  just diagnose how  scared she was of all these tests, procedures, doctors, nurses, etc.  Now she has become a pro.   I was amazed at how she stayed still for so long, she asked  the technician a few questions, and happily watched a movie.  But in my mind, I was thinking why are they taking  so long, what are they seeing.  I remembered when I was pregnant with Maya, and i was having an ultrasound, the technician was taking a long time, so I started to panic and when I looked at the screen all I could see was a string with what appeared to be 3 heads.  I freaked out and though, OMG I am having an alien with 3 heads and they are not telling me ahhh 🙂 Anyhow, after over 150 ultrasound images taken, Maya got a present from the ultrasound team for being a good girl.  We are waiting for the results  (BTW the ultrasound was ordered mainly to check the mucositis).

Friday afternoon was good, my sister Jen (Mayas fairy godmother) is in Toronto from Vancouver and she came for a visit.  Maya adores tia Jen.  Poor tia Jen had to read the same book over and over and over again.  Likewise I was able to socialize (any talking to other people is called now socializing for me)  a bit with Sonia, a good friend visiting from the UK. Also, I chatted with another NB mom, and cheered for her beautiful son who got to go home yesterday.

I wanted to thank all of you who are in this journey with us.  We continue to be amazed at the generosity and kindness of so many people. Thanks for the yummy food you have sent, the thoughts, chants, prayers and good energy you are sending this way.

Now off to figure out how to make my way to the main floor to  get a cup of coffee, I do not want to leave Maya alone, and there are no volunteers today…

Indira

June 16 – Busy , Busy, Busy

[KHK]  Please check out our photo’s  http://www.mayakim.ca/gallery/

An update since last Friday, we did go home in the afternoon after cycle 4.  Here is a picture of Maya and daddy very happy going home, yeahhh!!!

When we  get home , it is usually  very busy, and this has been the case this time around,  trying to get back to a routine, cooking for Maya, making sure she is drinking, she has fun and is well rested, cleaning up the house, clinic visits, and just running errands.   We (I) still have not unpacked our sick kids luggage, and at this point I am thinking I need to pack up a small bag as Maya’s counts are down and that means any fever and we are back at sick kids.  This week we saw Maya’s naturopaths twice (with one more visit later this week) .  We have started Maya on a naturopathic protocol which is integrated to the current protocol at Sick Kids.  Kirby and I are very happy with this desicion and are confident that it will help Maya.

Also this week we were at the cancer clinic, as usual it was a loong day.  Maya this time ventured into playing the Wii with a couple of older boys.  It always amazes me to see my little one.  Maya is a very self confident little girl, she  has no fear and speaks her mind (two things here mom is not :-)).  Maya was watching  and watching these 3 kids play,  then she approached them and in her Dora the explorer way ( when she talks she uses her hands like Dora) she said  ” guys, I want to play,  you need to take turns with other kids to play”, one of the older kids looked at Maya and laughed, and he graciously patted her head and gave her his chair and showed her how to play.  The other kids were not too impressed and ignored her.

June 14 playing wii

On tuesday, after the clinic we also met with Maya’s surgeon.  You can read more about Maya’s upcoming surgery on Kirby’s post tumor resection consultation.  For me it was  another bucket of cold water thrown at my face, sometimes I just cannot comprehend how sick Maya is, all the things she has endured and all the things that are coming up.  Towards the end of the meeting I had tears running down my face.  It has been a very emotional week,  my hormones are just craaazzyy with sleepless nights, tossing and turning thinking about how  cancer has affected our lives,  the uphill battle we still have ahead of us,  and just thinking of my beloved Maya.

On a good note, this past weekend our street had the annual summer party, but this year it was also a fundraising event with all  proceeds going to  neuroblastoma research at Sick Kids.  Maya and her friends had a lemonade stand, “.10 cents a ‘glace’ ” 😉 with all proceeds going to sick kids.  Yes people Maya is also fundraising big time.  She is also working on beautiful bead bracelets.   It was an amazing day, Kirby and I were humbled by the generosity and good hearts of all our neighbours. We are lucky to be surrounded by so many wonderful people.  I will write another post on this event with more details and pictures later this week.

This is Maya’s and Bridget’s very popular lemonade stand -after the lemonade sold out.

 

Maya with cousing Connor at the street party.

 

ahhh, the hated mouth sores have appeared, two so far, and Maya is taking advantage of the situation by asking for ice cream constantly :-), I am also blending ice cubes like crazy to try to mimic snow cones -Maya likes them, in this way  I can keep Maya calm for a while, before she starts to complain and ask why is getting mouth sores and and when are they going to go away.

Thanks everyone for your thoughts and prayers, and your good hearted gestures towards my family.

Indira

Street Party

Every year, there is a street party organized by our street and this year, the gang decided to make it cause-based; Namely for Maya and for NeuroBlastoma at sick-kids hospital. God bless everyone on my street.  They are fantastic and I am so grateful.  After having thought a little about it, I decided to talk about my experience… Naturally.  So, my little talk went something like this;

When I was about 12 – 13 years old, there was a girl who had cancer.  Her name was Simone.  I don’t know the specifics about her case, but I do recall that she wore a wig and she attended my Jr. High School.  The kids were not so kind to her.  That was 30 year ago. I also don’t know what has happened to her.  This is the only run-in with Cancer in my life.  Until now.

My daughter has something called NeuroBlastoma.  It’s is known to be a childhood cancer which is relatively rare and particularly unpleasant.  About 1/2 of the children who get it will relapse.  Because it is relatively rare, it does not get a great deal of attention from the health organizations nor from the big pharma in terms of research.

Now that my eyes are open to this area, I see that things have changed in our society.  In some 30 years, cancer has become main stream.  Everyone here knows someone who has cancer.  Everyone here knows that chemo is worse than the disease. How does this happen?  Some 30 years ago, it was rare.  And now, we’re all touched.  How does this happen?

I believe largely that it is environmental.  We are living in toxic environment.  Everything that we touch, breath and eat is somehow tainted with poison.  And inevitably, this toxic load expresses itself as some kind of disease.  In our case, it is cancer.  And unfortunately, because there are more toxins in our environment, children often carries a heavier toxic load than adults.

During the early courses of our diagnosis at Sick kids, we were asked to participate in bone marrow and tumor biopsy study.  The surgeons would take additional samples from Maya to study the disease. The samples would be banked and shared across COG (Children’s Oncology Group) across the world.  I asked the oncologist Dr Gupta how much of his knowledge was based on the previous participants.  He said it was 100 %.  We decided to participate because we were riding on the backs of those who were unfortunate to have come before us.  The benefit which we are reaping were on the backs of children some who have surely parished.

The WHO (World Health Organization) states that in the next 10 years or so, the rate of cancer will double.  There is also a report which suggest that 50% of the population will have cancer sometime in their life time.   So, in our life time, a typical family of four will have two members of the family who will require care.  On our street, rather than having one or two people with cancer, it will mean 4 or 5 people with cancer, in the next 10 years or so.

I would like to ask you to minimally take one action. I would like to ask you to do more than just take one action.  But foremostly, I would like to ask you to be aware of the cause.  The cause is the wellbeing of you and your family.

  • Be aware. Look at your food.  Please take a look at how much plastic your food comes in contact with. You will find that there isn’t a thing that is not touched by plastic.  If the gov’t bans plastic bottles from babies, why is it acceptable for a 2 year old, or a four or 8 or 80 year old?
  • Think about why we need:
    • water filtration system in our homes.
    • air filters.
    • organic food etc.
    • What is so wrong with our environment that we need all this extra precaution?
  • Donate blood.  One two year old received 32 blood transfusions in the course of 3 weeks.  Every drop helps.
  • I would like to ask you to donate to Maya’s fund.  1/2 of you will require the health care system, which we are so privileged to enjoy.  Help this cause as 1/2 of you will enjoy your health care on those who came before you.  Please provide the means for the health care professionals to make progress for those in need now and for those of us, who will require them in the future.

Thank you very much to everyone who donated their time and money for today.  Special thanks to Linda and Lucy for putting this all together.  Billy, I must again remind you how lucky you are to have Linda.

tumor resection consultation

Today, we met with the surgeon who will be performing the turmor resection, Dr Gerstle.  Per our protocol (ANBL 532 high risk, stage 4) the tumor resection takes place after the fifth induction cycle.  Some people have asked me why the team waits until the end of the first cycle and not remove the tumor at the start of the treatment.

The answer is simple. Tumors are fed by blood vessels and tumors grow around major arteries or blood vessels.  If you try to remove it immediately after the diagnosis, it would be much more difficult to remove the tumor.  After few rounds of chemo, the tumor typically shrinks (especially away from the major blood arteries/veins) and makes it easier to remove.  Hence, after the fifth cycle makes perfect sense.

As we have come to learn, there is a price for waiting.  Each cycle takes a toll on Maya and she becomes weaker. Longer you wait, weaker she is and it becomes tougher to go through a major surgery.

So, we’ll begin the fifth cycle in about two weeks time.  It’s the Cisplatin and Etoposide round again.  We know it will be hard on Maya.  But each cycle, we learn just a little bit more about cancer and we’re just a bit more prepared. After the fifth cycle, as it is the case with any cycle, Maya will start to “come back” from the aftermath of the chemo. When Maya’s White Blood Cell returns to a relatively safe zone, the tumor will be excised.

For Maya, there are two bodies that are in consideration.  There is the primary tumor, which surrounds her right kidney.  The tumor is quite well fed by the veins and arteries. Then there are a couple of lymph nodes that are enlarged around her left kidney.

So, the plan is to remove these lymph nodes from the left side first.  The rationale is quite simple.  The surgeons want to take care of the easy stuff first and make sure that they can save one of the kidney.  The result from the easy work will determine the course of action for Maya’s right kidney.  If the surgeons can easily save Maya’s left kidney, then dealing with her right kidney won’t necessarily be so critical.  So, if the right kidney dosn’t look so good, the surgeon will sacrifice it for the sake of removing the tumor.  However, if dealing with the left kidney prove to be onerous, the surgeon’s decision around the right kidney will be impacted by the state of the left kidney. Makes perfect sense.

So, Maya will have two largish scars around her diaphram, for each kidneys. The thing that came to my mind is that Maya will not be able to wear bikini’s…. how silly huh?

In addition, the second CT scan showed that there is a 1 cm mass on the right lobe of Maya’s liver.  The surgical team will assess this mass right before the operation.  If it is determined to be suspicious, it too will be removed as well. Secondly, in order to get to the kidneys, her intestines will need to be moved out of the way.  As intestines don’t like being moved, it will impact the peristalsis of the intestines.  In other words, Maya will not have any movement in her bowls for approx one week.

So, here we are.  We have approximately one month before the surgery.  According to those who have faced it already, it is non trivial and Maya is expected to be hospitalized for at least one week.  It is not going to be easy.  But, on the flip side, while not a trivial exercise, it is a well understood procedure, albeit that it could last 10 – 12 hours.

We hope for both kidneys..

Cycle IV update – day 3

Day 3 started with Maya waking up at 1am  in the morning and wanting to play and watch movies.  She had been sleeping since 6pm.   And so mom and Maya pretended to be sleeping beauty and her prince charming, we then watched a movie, and by 4am mom could not keep her eyes open, Maya relunctantly went to sleep.   She was up by 7am, and wanted to play again, but by 9am she had a  welcomed 2 hour nap.  In the afternoon she was sooo full of energy and we went to the playroom.  Maya was trycicling around the 8th floor like a mad kid, soo fast that we had to run to catch up with her.

All in all it was a good day, she did have a few episodes of nausea, which the nurses were quick to control, but so far no throwing up.  She was hungry, as she was asking for food, but once the food came the smell made her nauseous.  We tried different things, she would start eating and then she would scream, it smells, it smells, and so she ended up eating once again ketchup chips, and bread and butter.  The good news is that her drinking is up, 300 ml of water on thursday.

Day 3 also meant that she only got 2 drugs, Doxorubicin( the pink kool aid one running over 24 hours) and Vincristine.  We are done witht the hated Cyclophosphamide which caused Maya the hemorrhagic cystitis.  The team is still being very vigilant, Maya has to pee every two hours, they test the urine for blood every time.  In the afternoon our wonderful nurse looked worried and said that there were traces of blood in the urine, Kirby and I got worried as the plan initially was only 24 hours of Mesna, even though we had asked for more.   The doctors added another 18 hours of Mesna  (coats the bladder).  Overnight and this morning there have been no traces of blood on her urine, which is great news.

The plan is for us to go home today, we are waiting for the last chemo drug Doxorubicin to complete the 24 hour dripping and for the last bag of Mesna to complete.  Mom and Maya are exhausted, 3 nights of getting up every two hours is taking a toll, last night my biological 2 hour mental clock did not work, and the nurses had to come and wake me up to take Maya to pee to the washroom.   Maya will be on overnight hydration at home as a precaution, and we are also being given the pee sticks to test for blood at home.

Overall it has been a good cycle, much, much better than cycle 3 when Maya was constantly nauseous and did not want to get up from bed at all.  We will be very vigilant at home for any signs of cystitis (we are paranoid parents, we must have driven the doctors crazy with all the questions, pushing for more Mesna, summarizing the latest papers on cystitis prevention :-)).

We are back at the clinic on monday to check the blood counts as they have been dropping slowly, and so  another cycle of worrying about fevers and clinic visits is ahead of us, but we have become pros at it and we just hope for another wonderful time at home.

Cycle IV

[June 9, 2010]

Maya had a good day yesterday.  Unfortunately, Maya was not allowed to leave her room. The first day of chemo was uneventful.  Her appetite is good and she was in good spirits. As days pass, more uneasy we become. This morning, Maya was crying because her wrist was hurting. It is one of the side effects of Vincristine.  She got a morphine bolus.

 

cycle 4 looong update, thanks and other news

After cycle 3 we were home for  15 DAYS!!!!, this is the most time we have spent at home since March 25th.  We had a great time.  For a while, especially the last week it was like cancer did not exist. Taylor had friends over for a sleepover one weekend, Maya went to wonderland, attended 2 birthday parties, and organized a surprised birthday party for her mom (me :-)).  She was sooo excited with the preparations and kept on telling me that she had a secret she could not tell me.

Maya also went back to her ballet school for a class.  Maya has been attending the Body Language Academy of Dance since she was 2 1/2 years old, and she was sooo happy to see her little friends and her teachers again.  While watching her dance, I could not help but cry quietly in a corner, happy for her.  I had images of her first ballet recital last summer, how excited she was to be on stage.   This was also the first time I had taken Maya to her ballet class during this term, Karen usually takes her as it is on a Thursday, and I did not know the  mothers.  They all knew Maya, and were happy to see her.   I could tell that the moms did not know what to say.  I know the feeling, and I do not expect people to say anything, I know it is a difficult situation.

Thanks

I have been writing a post on thanking a lot of people who have started fundraising for us.  I will provide more details and post pictures, but a big thanks to my co-workers at Algorithmics (and their friends), Andy C  and his team “Run for Maya”  ran/walked  the 10K Sporting Life a few weeks ago (in support of pediatric cancer), they ran in honor of Maya, Thanks soo much, it meant a lot to us.  Maya got one of the Sporting Life medals with an inscription on it dedicate to her, thanks so much my friends, you were soo thoughtful.

Also thanks to my nephew Connor, who donated half of his birthday money to Maya’s fund, and thanks to all of you who have donated, we deeply appreciate your kindness.  I am not one to ask for help, but when it comes to one’s child, parents would do anything.   A lot of people have asked me how could they help: pray, meditate, or hope for Maya to get better.  Donate blood and if you are able to, please donate money to any cancer pediatric organization, or to  Maya’s fund in support of neuroblastoma research at sick kids.    I wish I could tell you  that all of the neuroblastoma patients make it, the reality is that almost half of all these children that achieve remission will relapse.  So we and many other parents hope  that our children’s stories will inspire people to donate to much needed Neuroblastoma research to improve survival rates and establish effective treatments for relapse.  Thanks from the bottom of our hearts.

Cycle IV Update

Maya’s chemo started yesterday, with 3 chemo drugs going inside her, one of them having the look of a light pink/orange kool aid, ” I  think they are giving me kool aid through the IV” 🙂  The first day was good, Maya was in gooood spirits, she played all day long, went to the library to pick up books.  On Monday night, Maya had ONE, only ONE runny stool, and of course right after that our door had  a sign for room arrest, ahhh  🙁 Maya was not allowed out of her room for 24 hours (contact precautions) , how do you keep an active 4 year old inside a room???  And of course all nurses and doctors wear these gowns when the sign is up, even Mary sunshine “The therapeutic clown” wore one when visiting Maya.  Maya kept on asking the doctors, why are you wearing the funny yellow gowns?

The first day of chemo was uneventful.  No nausea, no pain, we watched movies and did crafts all day long.   I pleaded with Maya’s nurse to let us go outside, her bowel movements were fine (solid and well formed —language used :-)).  The nurse was not longer wearing the special gown, he said yes that he was not wearing it because he did not think Maya had anything but it was the protocol to protect other children, which  I understand.   In any case he told us we could go to the library but not to the playroom.  So I strapped Maya to her stroller and pushing the stroller and the IV pole I was ready to take Maya to the library on the main floor.  On the way out there was a fire drill on our floor, so they told us to go to the play room.  Sick Kids had a toy drive – the toys for the oncology kids were being displayed on the playroom.  They had lots and lots of toys, big ones, and small ones, it was like Christmas time, Maya was sooo happy.  Maya picked out two toys and mommy picked up some MAC cosmetics.  Both Maya and mom were happy girls with her new treats on the way to the library.  BTW, Maya did not touch anything in the playroom, just pointed to what she wanted.

My friends from work  came in on Tuesday with some goodies, it was soo nice to see them, I miss them all.  Thanks girls for your thoughts and your emails.  THANKS to Sonia and all my UK friends, 1000 origami cranes came all the way from London for Maya, we were very, very touched by this (An ancient Japanese legend promises that anyone who folds a thousand origami cranes will be granted a wish by a crane, such as long life or recovery from illness or injury.  In Asia it is commonly said that folding 1000 paper origami cranes makes a person’s wish come true. — I think we know what that wish is :-))

Cycle IV Update -day 2:  After an uneventful night (aside of the taking Maya to pee every two hours), Maya woke up crying in pain as her wrists were hurting, doctors and nurses came in and yes, joint/bone pain is a side effect of one of the chemo drugs she is getting, after a morphine bolus, she slept until 11am and woke up happy and cheerful.  Her room arrest has been lifted as well , yeahh.    By 1pm Maya complained of nausea, and they gave her some ativent on top of the ondasetron she already gets every 8 hours.    Maya has no appetite  today, (Kirby do not read this :-))but she did eat a small bag of  ketchup chips , and 2 small buns with lots of butter.  When Maya is not feeling well she becomes very irritated, and demanding, I want a ring pop, mom goes to get a ring pop- got a green one, noooo i want a blue one, mom goes to get a bag of ring pops, nooo i do not want ring pops,  I want teriyaki chicken, mom calls Karen, please make teriyaki chicken and bring some for Maya, nooo I do not want teriyaki chicken, I want noodle soup, and so it goes.., but it will definetely end with Maya screaming  “Mom you are the worst mom ever, and I will never, never love you again”, so I know she is not feeling well.  It breaks my heart when she starts to feel well and she will say “Mom I am sorry”, she is a 4 year old, why does she have to go through all this crap. I freaking hate cancer, it has robbed my little one of sooo much….

Time at Home

TIME FLIES..we have been at home for exactly 11 days since Maya was last discharged  from Sick Kids… not enough :-).   Since March 25th we have spent more time at the hospital than at home.

We do have to go back to the cancer clinic for check ups.  Last week we visited the  clinic 3 times as Maya’s potassium, phosphate and magnesium were being monitored.

The visits go like this, get to the clinic, register, wait for Maya’s name to be called to either see her cancer team or go straight to the IV room for a blood test.  Then wait for at least 45 minutes for blood results to come back, and then see the cancer team again, so basically we are done by 1 or 2pm.    Afterwards we have lunch, and it is already 4pm, which means rush hour and being stuck in traffic, and so we get home after 5pm.  If a transfusion is needed (last week, Maya needed a platelets transfussion), more likely we will be going home late afternoon or early evening.

The cancer clinic is bright and big, and with a lot of activities for the kids, and they always have volunteers to play with the kids.   Maya loves a  touch and play screen, and it is hard to convince Maya to leave the clinic :-).

For me, it is always a reality check, as soon as i get to the clinic, i cannot help but look around and see all the families and all the kids,  before this I never knew a kid with cancer, now it is part of daily life.  My heart aches for Maya and for all the families, for all those little kids that are going through so much.

As for Maya, she is doing great!!! thanks to all of you for your positive thoughts and prayers.   She is off the nightly hydration, her magnesium, potassium and phosphate went back to normal, her appetite is back and she is gained back the weight she lost.  Our last visit to the clinic was this past Monday.  Maya was running around and talking a lot with all the nurses, always wanting to know what they were going to do.  If Maya sees something ( or hears something) she has not seen before when the nurses are flushing her line or doing some procedure, Maya would always ask, and what is this for? what are you doing next? why do you need to do that for? so she was back to being herself.

Maya has also been playing a lot with her neighbour friends, Bridget and Leana.  Maya loves them and when at the hospital she misses them.

Today I took Maya to Canada’s wonderland with one of her friends, the girls had a blast. It was good as there were not line ups for the rides, so by noon the girls had been in 90% of the kiddie rides.  Maya walked all the time, which is nice to see as she usually sits on her stroller.  It really made me happy to see Maya have so much fun.

Our time at home has been spent making sure Maya takes nutricious food, cooking everything from scratch, visits with a naturopath for Maya, and making sure that Maya has fun.

On Monday June 7th we’ll be back at sick kids for Maya’s fourth round of chemo.  But for now, we are enjoying the time at home, so far so good.

Thanks everyone for your emails, letters and your prayers

Indira

(Please check the link for Maya’s fund)

[KHK] Thank you very much to all who have donated on behalf of Maya.